Wednesday, February 3, 2016

Benjamin Button siblings suffer rare skin condition which makes them look decades older



Meet  Benjamin Button siblings who suffer from a rare skin condition which makes them look decades older, Mirror report. 7 year-old  Anjali Kumari and her baby brother, Keshav Kumar, is just 18 months - but their wrinkled skin and swollen faces belie their young years. The children suffer from a rare form of Progeria, a genetic disorder which causes the body to age at a much faster rate than normal. see photos after the cut.





The siblings also have a disease called Cutis Laxa, which doctors in India say is incurable.

Anjali and Keshav live in Ranchi, Jharkhand, with their father, Shatrughan Rajak, 40, mother Rinki Devi, 35, and older sister daughter Shilpi, 11, who do not have the disease.

Anjali told MailOnline: "I know I’m different from others my age. I have a different kind of face, a different body, different everything.

"I have a swollen face while the rest of the world looks normal. People always stare at me and pass bad comments."

The schoolgirl says she is called names like 'daadi Amma' (grandmother), 'budhiya' (old lady), 'bandariya' (monkey), and 'hanuman' (a Hindu monkey lord).


Their parents desperately hope for a cure but doctors in India have told them their only hope is to seek medical help abroad.



Dad Shatrughan, who earns 4,500 Rupees a month (£45) as a laundry man, told MailOnline: "We dream there is a cure for my children.


"People in our community call them ‘old’ and it’s heartbreaking. We’ve tried to get help from our local doctors but they have told us our only hope is from overseas."





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