Monday, November 7, 2016

TOO BAD...Boy born with his head upside-down in Indian dies just eight months after life-changing surgery

A 13-year-old boy in India whose head was hanging at a 180-degree angle has died just eight months after life-changing surgery to fix it.


Mahendra Ahirwar, who suffered from a rare condition called congenital myopathy which made the muscles in his neck so weak his head would hang, had been absolutely fine in the morning.

His mother Sumitra, 36, said he had his lunch on Saturday, lay down to watch TV and at around 3pm passed away.

 Crocked: Schoolboy Mahendra Ahirwar (pictured) had a rare condition which made his neck muscles so weak that his head hung to one side and he saw the world at a 180-degree angle
After the life-changing surgery, Mahendra,  above, could finally see the world the right way up
Before the operation Mahendra, pictured, was unable to go to school. But after the op he was allowed to join the other children, while wearing a neck brace
Dr Rajagopalan Krishnan, who completed the surgery to straighten his neck in February this year, said he was left shocked by his sudden death.

He said: 'I can only conjecture that a massive cardiac or pulmonary event might have occurred and often there are no premonitory symptoms in such cases. I think myopathy and poor chest muscles caught up with him in the end.

‘He was among the bravest children I’ve seen since my return to India and I see the most terrible and neglected deformities.' 

Dr Krishnan said: 'For me, the joy and smile on his face when his head stopped sagging was one of the defining moments in my decision to operate on children with neglected and awful spinal disorders. 

‘I am sure his absence will cause anguish to everyone who was involved in his care, his smile was brighter than the sun after his neck was straightened.'

Prior to surgery, his mother Sumitra, 36, said: 'I can't see Mahendra suffer any more. Watching his life is devastating. He cannot do anything by himself' TOO BAD...Boy born with his head upside-down in Indian dies just eight months after life-changing surgery

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