9 YEAR-OLD boy with rare condition which caused his brain to fall into his neck

A nine-year-old schoolboy has a rare condition that saw his BRAIN fall into his neck. Kai Diawne suffered from a rare condition which led to his brain slipping into his spine. He suffered from the illness for years – doctors think he could have been born with it, but this year had NINE operations to cure it, spending around 20 hours in surgery.

Now he is the healthiest he has ever been and is excited about his first Christmas with his head intact. 

He had an operation to remove a bone at the back of his skull , relieving pressure on his brain, in January this years. But a number of complications saw him rushed into theatre nine times during his six week stay at Sheffield Children's Hospital.

Now he is back home, back at school and back to his chatty self.